Take Action in 2026Self-advocates at a rally

Protect Medicaid & SNAP

The “One Big, Beautiful Bill” (OBBB) Act was signed into law—bringing with it significant cuts to federal Medicaid and SNAP funding. Medicaid is a lifeline for people with intellectual and developmental disabilities, making possible the services and supports that foster independence, inclusion, and quality of life.

Continue to share your support for Medicaid & SNAP.

If you or someone you know needs help finding meals, visit https://whyhunger.org/.

Advance Federal Recognition of the DSP Role

The U.S. Senate passed the “Recognizing the Role of Direct Support Professionals (DSPs) Act” (S.3211, H.R. 6137), which requires the Office of Management and Budget to consider updating the Standard Occupational Classification (SOC) and recognizing the DSP role as a distinct profession. This leads to data collection and ideally more robust funding. The bill now goes to the House Representatives.

Send an email to your member of Congress

The Impact on State Services

The deadline to finalize the New York State Budget is April 1. Now, we must advocate to Gov. Hochul, the state senate, and assembly to consider including our requests for FY27, specifically:

  • A 4% Targeted Inflationary Increase (TII) to ensure funding accounts for the increased cost of living , with at least 2.7% for agencies to invest in the everyday costs of operating the agency.
  • The Careforce Affordability Initiative to support affordable housing, childcare and healthcare for direct care staff.

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