Advocate
Take Action in 2025
New: Support SSI Savings Penalty Elimination Act
The SSI Savings Elimination Act was recently reintroduced. For over 30 years, the Supplemental Security Income (SSI) asset limit has been set at $2,000, while the cost of living has risen dramatically. This outdated rule leads to millions of people with disabilities living at the poverty line due to an inability to save for emergencies or a more financially secure future.
TAKE ACTION
Urgent: Reorganization of Administration for Community Living
Health and Human Services Secretary Robert F. Kennedy announced a major reorganization that will dismantle the Administration for Community Living (ACL), a vital agency that has coordinated and protect programs for people with disabilities and older adults for over a decade. Instead of strengthening support, this plan scatters ACL’s programs across multiple agencies, potentially creating confusion, reducing visibility, and undermining funding. From NADSP.
Urgent: Protect Medicaid for I/DD Services
The U.S. House of Representatives approved a budget resolution that paves the way for Medicaid cuts. As Congress continues to consider legislation that could deeply reduce federal Medicaid funding, we must take action and make our voices heard. Medicaid is a lifeline for people with I/DD, providing critical services and support that promote independence, inclusion, and well-being.
- Take Action: Share Your Story
Personal stories are powerful tools in advocacy. By sharing your experience, you can help policymakers understand the real impact of Medicaid and why these services must be protected. Use our Share Your Story tool to tell us how Medicaid has made a difference in your life, your family’s life, or your community. Your voice matters—let’s stand together to protect Medicaid and the essential services it provides.
At the State Level
For the NYS Budget, let’s call out together for a 7.8% increase in provider rates for DSP/non-executive wages and address inflation impacting benefits, maintenance, utilities, food, supplies, transportation and insurance. *From NYDA
Take action on the upcoming state budget. Send an email.
Stay Connected
- Sign up for Regional Advocacy Groups―to connect with fellow advocates and educate candidates on both sides of the aisle about disability rights.
- Find out who your elected officials are. Get started.
- Set up a “lobby visit” with your representatives. Tips available here.
- Share our social media posts (Facebook, Instagram, LinkedIn)