Advocate
New! Watch CEO Stanfort Perry’s State Senate Testimony on barriers to employment.
Disability Services Advanced in NYS Budget
Your advocacy helped secure meaningful investments in disability services as Governor Hochul and the New York State Legislature included a 2.7% Targeted Inflationary Increase in the enacted state budget. The budget also includes flexible attestation language, offering providers with greater flexibility to use these funds where they are needed most to support people with intellectual and developmental disabilities. We are grateful to our elected officials for recognizing the value of these essential services.
How to Get Involved.
*Check out Key Learnings from the In-Person Advocacy Workshop in January to help you get started advocating!
Federal Issues to Consider
Federal funding has its own distinct process and priorities. Below are the priorities our community is seeking to advance. If you’re interested in learning more about the basics of federal funding, Medicaid, IDEA, and hold a successful meeting with legislators. Check out these videos from the 2026 Disability Policy Seminar.
Take Action: Protect Medicaid Access for People With Disabilities
A developmental disability diagnosis may not be enough to qualify for a Medicaid work exemption starting Jan. 1, 2027. Under proposed federal Medicaid eligibility rules, the criteria is used to determine disability-related exemptions could be narrower than the broader definition of disability recognized under the Americans With Disabilities Act (ADA).For many people with intellectual and developmental disabilities (IDD), Medicaid is more than health coverage – it funds the essential supports needed to live independently, work, and participate in their communities. These proposed changes could put access to essential services at risk for some people with disabilities.Share your perspective with federal policymakers and help ensure the voices of people with disabilities, families, and providers are heard before the July 31, 2026. Take action here!
- Protect Special Education
Students with disabilities are public education students first. Recent federal proposals could move key special education and civil rights functions out of the U.S. Department of Education, raising concerning about consistency, oversight, and accountability for students with disabilities.
Learn More
-The Arc US, “Moving Special Education and Civil Rights Out of Education Department Risks a Patchwork of Rights for Students With Disabilities”
-The EDU Ledger, “Civil Rights and Disability Offices Relocated from U.S. Department of Education in
Broader Federal Restructuring Effort”
- Advance Federal Recognition of the DSP Role
The “Recognizing the Role of Direct Support Professionals (DSPs) Act” (S.3211, H.R. 6137) would require the federal Office of Management and Budget to consider updating the Standard Occupational Classification (SOC) and recognizing the DSP role as a distinct profession. This would lead to data collection and ideally more robust funding.